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Young Epilepsy

Organisation Summary

Business Sector:Education, Health and Residential Care Services

Business Activities:School, College, Residential Services, Health and Assessment, and National Services for 112,000 young people with epilepsy in the UK

Business Location:Lingfield, Surrey

Chief Executive:Carol Long

Turnover:c. £25m


Legal structure:Charity and Company Ltd by Guarantee

Young Epilepsy

Young Epilepsy operates St Piers School, a non-maintained, residential, special school for young people and children aged 5-19, and St Piers College, which provides further education for students aged 19-25. Both are based on the charity’s campus in Lingfield, Surrey, along with the Connect2 service, which offers support to young adults with extremely complex needs.

The campus is also home to the Neville Childhood Epilepsy Centre. This is a flagship facility providing diagnostic services, treatment, assessment and rehabilitation services for children and young people with epilepsy and associated conditions. Young Epilepsy’s research programme is also based here, and its conference facilities are used for training, teaching and professional development.

Nationally, Young Epilepsy operates a range of services designed to support the 112,000 people aged 25 and under in the UK, who have epilepsy. This includes a Helpline and Information Service, individual and family outreach work, a training programme for schools and allied health services, and for the Champions Awards programme.

E3M Member

Young Epilepsy

Name:Carol Long

Title :Chief Executive

Carol Joined Young Epilepsy as its Chief Executive in April 2014.

After graduating in Psychology from York University, Carol started her career in residential care with emotionally and behaviourally disturbed adolescents in London, before qualifying in social work at the London School of Economics. She worked in Local Authorities for over 20 years, specialising in child protection and therapeutic services for looked after children. She held a number roles, finally becoming an Assistant Director. Carol has led service development in child protection, fostering and adoption, children with disabilities, family support and Youth Offending Services, and this latter role included a secondment to the Youth Justice Board. Carol also held a wider commissioning role for services for children.

On leaving the Local Authority she became CEO of a therapeutic residential care provider in Scotland, which trebled in size whilst she was there, and she set up a sister fostering company to this organisation. She joined the NSPCC in 2011 as Director of Services for Children and Families, and had responsibility for developing their operational services across the four nations of the UK prior to joining Young Epilepsy as its Chief Executive. Since arriving at Young Epilepsy, she has been developing a new business strategy and new services to meet the needs of young people with epilepsy and associated neurological conditions.